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(worriedinCali)- If a person is really dying of cancer, in pain, & needs painkillers that is a whole different story, but that's not what I'm talking about & no one has the right to play GOD!
Sounds like we may have some hospice nurses on here playing damage control.
Hospice did not murder my MIL. My husband did not murder his mother when he made the decision to start morphine. Morphine allowed her sleep through her finally few days peacefully, until her wear heart gave out. There was no “final cocktail” administered. Had morphine been refused until the very end, she would have had a traumatic, painful, suffering death! She would not have gone peacefully. She would have continued to “feel terrible” (that was her last complaint, she felt terrible) and she would have suffocated to death. I guess all the prolifers of the world would have done the opposite? They would have called 911 and had paramedics pound on her frail chest, breaking her ribs. (She went from 140lbs to 60lbs in a few short months, she was skin and bones when she died). They have would her taken to the hospital and hooked up machines and tubes, never to speak again. And then what? Beg and plead with the doctors to do something? What do they think can be done for someone who’s body has just about shut down completely and will never recover? And why prolong a suffering life?
The case is egregious. Happily, a) it is *extremely* unusual; and b) none of the people involved will ever work in healthcare again.
Good.
With nothing to help him he will be lying in or should I say sitting up in his bed or recliner with all the windows open and a couple of fans blowing on him, his skeletal chest exposed to the cold night air with 2 or 3 oxygen concentraters pumping out their maximum. He will be gasping for air with his mouth open too weak to cough up the junk from his lungs that you can hear rattling with every breath.
Is that the way you want to watch your Dad leave this world. You can call the EMTs and go to the ER and your choice is life support which means intubation when he won't be able to talk because of the tube in his throat.
You and the family are at the bedside wringing your hands weeping and wailing begging the Dr to do something it's cruel to allow him to be sufferig like this.
You would be right it is cruel to let someone suffer like this very very cruel.
What can the Dr do? is there anything to ease his suffering?
Well there is it is called Morphine. It does not cure anything and no one wants to use it but on the other hand what your Dad will be experiencing is not called living it is called suffering.
Wouldn't it be better to see him possibly at home tucked up in his own bed sleeping peacefully even if he does not wake up again.
It is not a sin to ease suffering but it is if you cause it or allow it to continue when you have the means to ease it.
Easing suffering is not euthanasia or murder it is our God given gift to help each other if we can.
By the way I have witnessed the scenario I just described many times and also have COPD and when the time comes I will gladly and thankfully accept all the help I can get.
Ignoring ugly is not a comfort zone, it is the way to guilt and grief so think on that before you condemn the caring professionals who seek to comfort the dying
From the information in the ACA, it is all positive regarding Hospice. Therefore, I am curious where you are finding your information regarding ACA.
*Palliative Sedation/Terminal Sedation is a slow form of Euthanasia & in many cases is abused & misused in rogue hospices.
*Terminal Sedation is being used too often on patients before they are in an active dying phase.
*In some cases the elderly are being pushed out of the hospital too soon & funneled into hospice to keep costs down or because of the Medicare 30 day readmission rule(Medicare).
*In some cases doctors are receiving incentives(against the law) for declaring patients(hospice ready) who really are not.
*Rogue hospices are murdering patients because of caps & limitations on Payments.
There is a lot of corruption going on in America because of new Medicare/Medicaid rules & regulations(Affordable Care Act).
Hospice or not,It was Mother's time.
To have morphine on hand, at home? Yes ma'am? Not to administer if not needed, but not to have to bleat for it? Jeez, my mom was in some kind of agony and doubling her tramadol did nothing. Morphine was a blessing. She was in a NH. If she'd been at home, it would have been a no brainer to giver a low dose to ease her breathing and pain.
A personal experience in the last month proves this in our family. Patient didn't really have anything that would threaten to end his life within 6 months, he was just getting debilitated by Parkinson's, but dr urged hospice. Hospice urged DNR and pushed morphine, etc. every time they came to visit, both of which were refused by caregiver. Patient was not in pain or agitated and was easy for caregiver to manage so why push drugs?
If you have a parent, child, loved one who is dying, in agony and you understand that Hospice's purpose is to provide COMFORT to the patient, not to try to drag them back from the brink of death with whatever painful lifesaving techniques can be brought to bear on their on-the-verge-of-death body, only to continue to die painfully, then Hospice is a great blessing.
Those of us who've watched loved ones TORTURED by medical professionals, in the service of "we can make him live one more day", then you GET what Hospice is about. It's NOT about putting the patient to death. It's about letting nature takes its course while making sure the patient is not agitated or in pain.
For some folks, I understand, this is a sin. Only God can determine when and how one dies and if God decrees that we die in pain, then so be it. I don't happen to believe in THAT kind of God.
My mom, having watched my dad battle leukemia, opt for dialysis when his kidneys shut down, and die quite painfully while on dialysis, decided that when she had something that couldn't be treated, she wanted to go peacefully and painlessly. She made us promise that we'd see that this happened.
So when a couple of "atypical" cells showed up in her plueral effusion when she was in her late 80s and they wanted to do a bone marrow biopsy, she counted on us to say "no way". When she developed dementia and became more and more frail, we had the docs treat what they could (heart block, pneumonia, delusions) with meds, knowing that nothing she had could be cured. And when she fell and refused to get out of bed, we knew that she was telling us, through her actions, that she was done. We got hospice in to treat her pain with morphine and her agitation with Ativan.
She went down surrounded by love and opera arias.
If we hadn't had hospice, would she have lived a couple of hours longer, with the look of terror on her face that I still remember before they started the morphine? Maybe. But seeing my mom die in peace was a blessing for all of us.
If you don't want hospice, don't sign up.
I am sorry for your experiences - but to flame all Hospice Care isn't right either. Here in my area, Hospice has been rewritten to keep people alive and have proven to be extremely helpful and supply a ton of supplies for free.
I personally saw my father being cared for so tenderly - he was allowed to pass with dignity. They came daily and bathed him and he gloried in it. They were truly sorry when he passed in 5 days after stopping his dialysis. I had stopped all his multiple medications as I saw no reason to prolong his suffering. He thanked me for stopping 15 medications.
During that 5 days they helped to keep him pain-free for the first time in more years than even he could count.
https://www.agingcare.com/discussions/did-hospice-rush-your-loved-ones-death-162802.htm
The Hospice Patients Alliance is also an excellent resource for anyone dealing with hospice. There's helpful advice and warnings.
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You obviously have been deeply affected by events...but you should use your energies focusing on ways to improve things in the industry..society..to ensure that mistakes are not made ...and work directly with organizations rather than posting gibberish here that is counter productive..and causes you to lose credibility...and takes from people who need to share their experience...and ask questions...
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